It took years for the system to acknowledge our situation. We only wanted a diagnosis so that resources could be signposted, labels don’t acknowledge individuality! Despite needing reasonable adjustments, nothing happened quickly……..most unreasonable! It affected our lives.
We kept each other sane despite the strain but time and again we went looking for support that wasn’t there. As a parent I skilled up. Fortunately my studies and career were directly linked to my family’s needs. Along the way I met many who needed help and helped where I could.
It’s ok to be different. It’s not the individual that’s the issue, it’s how the individual is responded to. On so many occasions the uniqueness of autism has positively enriched our lives. I’ve learnt so much on our journey……maybe I could support you on yours.